tag:blogger.com,1999:blog-1078685116296921818.post4605398662661316780..comments2023-04-26T09:15:19.142-04:00Comments on CFS Central: NOV 29 PROTEST AT BARTSMindy Kiteihttp://www.blogger.com/profile/12570126270241201680noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-1078685116296921818.post-48970472539012181562011-01-30T13:35:02.676-05:002011-01-30T13:35:02.676-05:00the new york mob would have gotten rid of them a l...the new york mob would have gotten rid of them a long time ago...the u.k. medical system is 30 to 40 years behind north america...aidan walshnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-26192800589198568542011-01-30T12:41:50.266-05:002011-01-30T12:41:50.266-05:00donate blood every 2 weeks, then they will take it...donate blood every 2 weeks, then they will take it more seriously...sincerely aidan walsh southampton, u.k.aidan walshnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-24933933282655062302011-01-05T22:38:00.422-05:002011-01-05T22:38:00.422-05:00UK=RubbishUK=RubbishAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-89093603009283302332010-12-01T17:22:36.288-05:002010-12-01T17:22:36.288-05:00Annette, Congratulations and THANK YOU for contrad...Annette, Congratulations and THANK YOU for contradicting the Bart's "celebration" and for Mindy to publicize it. It had to make the attendees think. I sent emails and wished I had Wesseley's email address. The president of the US doctors organization (IAME/CFS) is a psychologist and also believes in positive thinking (http://www.forums.aboutmecfs.org/content.php?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-24010876991924363932010-12-01T15:44:20.604-05:002010-12-01T15:44:20.604-05:00Thank you Mindy for covering our protest. Around 1...Thank you Mindy for covering our protest. Around 10 people made it through the bitterly cold weather and the tube strike to be there on the day.<br /><br />I've put up an update on the website and some photos<br />http://www.notsonice4me.co.uk/BARTS_PROTEST.htmAnnettenoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-18423239997693782862010-12-01T12:02:08.792-05:002010-12-01T12:02:08.792-05:00Thanks for all the support to us in the UK.
You an...Thanks for all the support to us in the UK.<br />You and the US keep hope alive.Thank You.<br /><br />M.M.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-16495196494611621992010-11-29T09:04:54.509-05:002010-11-29T09:04:54.509-05:00Thank-you Mindy. That St. Bart's is hosting a ...Thank-you Mindy. That St. Bart's is hosting a training day to celebrate their 25 years of abuse of ME patients really rubs salt into our already deep and open wounds. The abuse of Ean Proctor taught Wessely nothing. Over 20 years later they are still abusing patients, including children. The latest episode is Esther Crawley's totally unethical study of the well-known scam The Lightning Jo Besthttps://www.blogger.com/profile/00376971164020122947noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-40772759273386785332010-11-28T02:00:07.315-05:002010-11-28T02:00:07.315-05:00Thanks for the info on this protest - I've sen...Thanks for the info on this protest - I've sent them an email as I can't attend in person. :)<br /><br />I just hope they listen.Susannahhttps://www.blogger.com/profile/04706238776151154062noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-51619143360134724702010-11-27T22:45:43.254-05:002010-11-27T22:45:43.254-05:00Stories like this are revolting. May it all come t...Stories like this are revolting. May it all come to an end soon! The above link doesn't workAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-1193368514872849942010-11-27T11:16:27.031-05:002010-11-27T11:16:27.031-05:00Thanks for this.
The Barts service is jointly hea...Thanks for this.<br /><br />The Barts service is jointly headed by Prof. Peter White who has been very close to the CDC's CFS program.<br /><br />One can read about the very hardline views they expressed on the draft NICE Guidelines at: http://bit.ly/bwkzsH i.e.<br />http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0709A&L=CO-CURE&P=R2063&I=-3TKno2https://www.blogger.com/profile/12390568027330222100noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-54557233395769919942010-11-27T08:05:41.481-05:002010-11-27T08:05:41.481-05:00So many awful stories, it breaks my heart. I know...So many awful stories, it breaks my heart. I know of a 30 yr old who rarely leaves home as she is in too much pain with FM. I've had no luck contacting her, but who knows what she had been told and what her real diagnosis is. Medieval is the right word.<br /><br />Bless those fighting for us.Helen McInerneynoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-83740860514006756642010-11-27T06:03:36.845-05:002010-11-27T06:03:36.845-05:00It's the same disgusting approach over here in...It's the same disgusting approach over here in Belgium. To get government benefits the healt care pressures you to follow CBT & GET, otherwise you get into financial problems. The only thing they are allowed to prescribe is anti-depressants and sleepmedication. Physicians who actually took these patients seriously and prescribed them medications to boost the immuunsystem, got a fine of Estherhttps://www.blogger.com/profile/08282420310635397827noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-16675251195469666292010-11-27T05:36:14.532-05:002010-11-27T05:36:14.532-05:00These medics are off their rockers. Stupidity ru...These medics are off their rockers. Stupidity rules with them. Let's tell them what we think of that, and force a change. Thanks for covering this Mindy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-40291535193487047322010-11-27T05:23:13.550-05:002010-11-27T05:23:13.550-05:00Thank you for this reminder about the protest at S...Thank you for this reminder about the protest at St. Bart's, and also for giving the moving story of Rosie O'Grady. I am sure her story of at St. Bart's is just one of many. I hope everyone who can will participate in person or online.<br /><br />Patricia Carter<br />XMRV+, 24 years ME<br />www.mecfsforums.comWildaisyhttps://www.blogger.com/profile/06367939092107380380noreply@blogger.com