tag:blogger.com,1999:blog-1078685116296921818.post5491064144457521412..comments2023-04-26T09:15:19.142-04:00Comments on CFS Central: NOT ENOUGH INFORMATIONMindy Kiteihttp://www.blogger.com/profile/12570126270241201680noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-1078685116296921818.post-55195180861578083372011-10-15T13:21:49.448-04:002011-10-15T13:21:49.448-04:00I am a middle-aged man who has had CFS for 10 year...I am a middle-aged man who has had CFS for 10 years. It took me a while to accept that I can't cure this; I can only manage it. I have done that but regularly fall victim to the push-and-crash cycle: I feel good, do too much, and then crash. It takes weeks to get back to "normal." I take meds for mood (Prozac), sleep (Ambien) and pain (Flexiril) but Concerta has made the biggest CFS Patientshttp://www.findrxonline.com/talknoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-52294252602281187652011-04-25T15:11:28.688-04:002011-04-25T15:11:28.688-04:00HI Mindy, thanks for all your efforts over the pas...HI Mindy, thanks for all your efforts over the past 2 decades to help educate the public. at RESCIND, INC, we have pushed for 23 years to get patients and doctors to try for ONE day each year to help inform the public about the serious natures of these CIND (Chronic Immunological and Neurological diseases). this year we are asking patients to write ONE heartfelt letter to President Obama and TMHJRhttps://www.blogger.com/profile/12132963783631537933noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-16570335339034630272011-04-25T08:23:38.193-04:002011-04-25T08:23:38.193-04:00The title says it all - medical schools are not pr...The title says it all - medical schools are not providing enough information to be of any use to our doctors and allied health staff of the future.ZzirFhttps://www.blogger.com/profile/03450283171062171697noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-41400821296111142992011-04-23T14:17:49.790-04:002011-04-23T14:17:49.790-04:00The problem is less that doctors be educated about...The problem is less that doctors be educated about any specific illness than it is that they have not been taught, or screened, for how to THINK for themselves. To analyze what they see.<br /><br />The precepts of Osler have been lost, even as doctors give phony lip service Sir William Osler's famous quote: "Listen to the patient, he will tell you his diagnosis"<br /><br /> "Erik Johnsonnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-53175152576360291292011-04-23T13:16:17.443-04:002011-04-23T13:16:17.443-04:00David:
I am not the other anonymous but at least ...David:<br /><br />I am not the other anonymous but at least on blood volume there are some studies:<br />1. Chronic fatigue syndrome: comments on deconditioning, blood volume and resulting cardiac function.<br />http://www.ncbi.nlm.nih.gov/pubmed/19534728<br />2. Chronic fatigue syndrome: illness severity, sedentary lifestyle, blood volume and evidence of diminished cardiac function.<br />http://Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-68694505396141802852011-04-23T12:04:19.418-04:002011-04-23T12:04:19.418-04:00Mindy: I am sorry to post something not germane to...Mindy: I am sorry to post something not germane to your excellent post above. But, you know the Chase Community Giving is going on now and we must have as many people as possible voting for Whittemore-Peterson Institute (WPI) to get them the money for an assistant and a physician. Please post the direct link for Facebook Chase Community Giving for WPI - below. Thanks Mindy - Sharon.<br /><br /><Sharon Stapletonnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-89824911159275254462011-04-23T09:28:07.785-04:002011-04-23T09:28:07.785-04:00Great blog, it's interesting to hear what'...Great blog, it's interesting to hear what's being taught.<br /><br />Urgh, ME/CFS has such a distinctive symptom set as per the canadian guidelines, you would think some of that would be incorporated into the text books.<br /><br />I'm also interested in the low blood volume source/s??Xhttps://www.blogger.com/profile/07736967406360912646noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-27067500433667430332011-04-23T09:13:50.933-04:002011-04-23T09:13:50.933-04:00David, generally over the years, I think I have re...David, generally over the years, I think I have read things from Dr. Cheney, Dr. Bell, Richvank, Dr. Teitelbaum, and I think there was an article in the Research, News and Articles page at Prohealth at one time. I think the low blood volume aspect is common. The tendency to mild diabetes insipidus may be less consistent. Maybe someone could try a poll at Phoenix Rising some time to find out the Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-80572343343649889282011-04-23T01:44:23.756-04:002011-04-23T01:44:23.756-04:00to anonymous: where do you get your information ab...to anonymous: where do you get your information about blood volume and diabetes insipidus? am actively looking into this but need sources..Davidhttps://www.blogger.com/profile/10778342601996392913noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-43264973086480398182011-04-23T00:54:39.387-04:002011-04-23T00:54:39.387-04:00I think thats where Residency and heading into a &...I think thats where Residency and heading into a "Specialty" come in....the student learns more about Rheumatology and a bit More about Fibromyalgia in this study. The 11 points of pain are pretty specific and the genetic predisposition although suspected, once again, a mystery although a reported 10 million folks in The U.S. have Fibro....very sad.<br /><br />The CFS...he/she would Julia Rachelhttps://www.blogger.com/profile/15312265786418302696noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-15141802230001377502011-04-23T00:38:24.191-04:002011-04-23T00:38:24.191-04:00It seems crucial to me that doctors should be educ...It seems crucial to me that doctors should be educated about the fact that over 90% of people with cfs show signs of sleep apnea. They have 80% of the blood volume of healthy people (form of diabetes insipidus). They have food allergies and sensitivities; low natural killer cells and other immune system problems; hpa axis abnormalities, etc. They should be treated differently using anesthetics Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-54812338185128296012011-04-22T22:57:12.291-04:002011-04-22T22:57:12.291-04:00Wildaisy,
That's true, it could be worse. Ho...Wildaisy,<br /><br />That's true, it could be worse. However, my nephew hasn't had psychiatry yet. Stay tuned.Mindy Kiteihttps://www.blogger.com/profile/12570126270241201680noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-80124398327704536422011-04-22T22:10:59.142-04:002011-04-22T22:10:59.142-04:00CFS isn't really a disease and there's no ...CFS isn't really a disease and there's no such thing as ME/CFS, just another term that can be used to mean different things. When asked, no one will say -- but it is NOT a new name or even a name change. We need to demand clarity and consistency. We should not accept ME/CFS on these grounds. <br /><br />ME needs to be included and taught in med schools.Jillhttps://www.blogger.com/profile/01316284870104429837noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-43316316826058466812011-04-22T21:38:39.384-04:002011-04-22T21:38:39.384-04:00It's true. My friend is in residency at he sai...It's true. My friend is in residency at he said they taught next to nothing about CFS in school. There's still a perception medical field that it's not a disease to be taken seriously, I think.Davidhttps://www.blogger.com/profile/10778342601996392913noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-33086324299482560892011-04-22T21:18:18.276-04:002011-04-22T21:18:18.276-04:00Frequency and content analysis of chronic fatigue ...Frequency and content analysis of chronic fatigue syndrome in medical text books. Jason LA, Paavola E, Porter N, Morello ML. <br /><br />Abstract<br /><br />Text books are a cornerstone in the training of medical staff and students, and they are an important source of references and reviews for these professionals. The objective of this study was to determine both the quantity and quality of Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-55268180870494870122011-04-22T20:55:42.745-04:002011-04-22T20:55:42.745-04:00Thank you, Mindy,for pointing out the problems wit...Thank you, Mindy,for pointing out the problems with the education of doctors in medical schools. I think your example might actually be better than what is being taught in some other medical schools, which is that if someone has "Chronic Fatigue Syndrome," they have a psychological problem. No wonder people suffering with M.E. have problems getting real treatment from physicians.<br />wildaisyflhttps://www.blogger.com/profile/03631249631409695914noreply@blogger.com