tag:blogger.com,1999:blog-1078685116296921818.post5544868236252976589..comments2023-04-26T09:15:19.142-04:00Comments on CFS Central: DOCTOR, DOCTOR, GIVE ME THE NEWSMindy Kiteihttp://www.blogger.com/profile/12570126270241201680noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-1078685116296921818.post-62117156218736701242011-12-19T18:05:36.734-05:002011-12-19T18:05:36.734-05:00While millions of ailing, immunodeficient CFS/ME p...While millions of ailing, immunodeficient CFS/ME patients are mindfully belittled & neglected, perfectly healthy HIV+ people are allocated billions of dollars in taxpayer money for research and services. How does that make any sense to anyone? <br /><br />It is so easy to see that the medical establishment simply has these paradigms (CFS, HIV) inverted. Why can't people see that AIDS CFSBOSTONhttp://www.cfsstraighttalk.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-76172915671354866492011-09-07T04:35:01.117-04:002011-09-07T04:35:01.117-04:00Does anyone know what the results were...I looked ...Does anyone know what the results were...I looked at the CFSAC website and there is a list of members, which does not include Dr. Grobstein. But I also don't see Mr. Sasser's name.John Clemensnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-88670499040938661962011-08-27T05:55:54.559-04:002011-08-27T05:55:54.559-04:00Is xmrv association over?Is xmrv association over?dave mhttp://fastcars.wsnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-75842143896335397972011-08-24T18:23:40.088-04:002011-08-24T18:23:40.088-04:00I am so happy Dr. Grobstein is willing to serve. ...I am so happy Dr. Grobstein is willing to serve. We must get her on CFSAC and prevent Suzanne Vernon from being appointed.Justinhttps://www.blogger.com/profile/16661093224060056052noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-7554035675477490562011-08-17T23:58:44.923-04:002011-08-17T23:58:44.923-04:00I've been in contact before with Dr. Grobstein...I've been in contact before with Dr. Grobstein, both by E-mail and Skype. I think she would be an excellent choice.Tom Kindlonhttp://www.ipetitions.com/petition/empirical_defn_and_cfs_research/noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-52229149292529925862011-08-17T17:31:48.953-04:002011-08-17T17:31:48.953-04:00I cannot think of anything that CFSAC has accompli...I cannot think of anything that CFSAC has accomplished since its existence. Certainly ME/CFS isn't going to help. Technically there's no such thing as ME/CFS research. Beyond the little group that attended, HHS got strenuous objections.Jillhttps://www.blogger.com/profile/01316284870104429837noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-74226921572226944902011-08-17T17:01:12.949-04:002011-08-17T17:01:12.949-04:00NOTE: It might be best to send faxes directly to ...NOTE: It might be best to send faxes directly to Dr. Nancy Lee at 202-401-4005. A neighbor told me the other number turned out to be a phone number.<br /><br />Also, keep in mind that Dr. Grobstein is competing against Mr. Sasser for the only non-biomedical researcher position currently open.<br /><br />Mr. Sasser is a disability attorney. There already is a disability attorney sitting on Liz Willowhttps://www.blogger.com/profile/11224204717888883351noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-52867617021651631042011-08-17T13:52:24.852-04:002011-08-17T13:52:24.852-04:00Suzanne Vernon has been nominated as well. There ...Suzanne Vernon has been nominated as well. There is a petition to voice objection here:<br /><br />http://www.change.org/petitions/patients-against-the-nomination-of-dr-suzanne-vernon-to-the-cfsacKhaly Castlehttps://www.blogger.com/profile/11225321930336123939noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-24232933591254480292011-08-16T21:46:52.525-04:002011-08-16T21:46:52.525-04:00better yet - go on facebook and voice your opinion...better yet - go on facebook and voice your opinion on an appropriate page - like the "black mold" pages for some of you!shelleyhttp://www.facebook.com/shelleysf8noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-6832632137698531102011-08-16T18:19:42.027-04:002011-08-16T18:19:42.027-04:00Joan Grobstein sounds to me like an excellent cand...Joan Grobstein sounds to me like an excellent candidate for this position. It is almost impossible to teach a doctor how severe and punishing this disease is. Many times I have come close to wishing that one or more of them could experience it for just a month--not the decades that we have to live with it. Let us write in and say our prayers. Marilyn BloomerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-9330531451689501352011-08-16T16:38:52.353-04:002011-08-16T16:38:52.353-04:00A so-called "ME" group, the IMEA, nomina...A so-called "ME" group, the IMEA, nominates an MD with ME. Talks about ME/CFS. This is the CFSAC - for Chronic Fatigue Syndrome. This will have anything to do with ME? Or keeping the befuddled ME/CFS will keep everyone happy.Jillhttps://www.blogger.com/profile/01316284870104429837noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-16141724723743678052011-08-16T15:35:06.333-04:002011-08-16T15:35:06.333-04:00free faxes can be sent from www.faxorama.com to th...free faxes can be sent from www.faxorama.com to the office of women's health for Nancy Lee who has Wanda Jones old job now.<br />The office of women's health fax is 1-202-205-2631Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-42293009269739653752011-08-16T15:00:02.324-04:002011-08-16T15:00:02.324-04:00This is a great idea!
Today is the last day for n...This is a great idea!<br /><br />Today is the last day for nominations. The people who get appointed tend to have support from others.<br /><br />We have until 5 pm EST to support this nomination.<br /><br />Please, if you are able, write a short comment supporting the IMEA nomination of Dr. Grobstein to Dr. Nancy Lee, Executive Secretary of the CFSAC, and fax it to 202-205-2631.<br /><br />If Liz Willowhttps://www.blogger.com/profile/11224204717888883351noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-70046636936872310092011-08-16T14:24:06.138-04:002011-08-16T14:24:06.138-04:00I have profound respect for Dr. Joan Grobstein, an...I have profound respect for Dr. Joan Grobstein, and I am still in awe of her testimony at the Oct. 2009 CFSAC, which was the first I knew of her. I think she would be a tremendous asset to the CFSAC.<br /><br />Patricia CarterWildaisyhttps://www.blogger.com/profile/03387587496317619866noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-40729946891805363192011-08-16T13:41:48.734-04:002011-08-16T13:41:48.734-04:00Perfect.Perfect.Erik Johnsonnoreply@blogger.com