tag:blogger.com,1999:blog-1078685116296921818.post6148434828704636618..comments2023-04-26T09:15:19.142-04:00Comments on CFS Central: COWARDLY ACTS and EVERYDAY REBELLIONSMindy Kiteihttp://www.blogger.com/profile/12570126270241201680noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-1078685116296921818.post-63021555958572984202010-07-10T20:50:34.719-04:002010-07-10T20:50:34.719-04:00As usual, I enjoyed today's article. I find th...As usual, I enjoyed today's article. I find that viewing events in an historical context gives me a better sense of perspective and patience.<br /><br />But honestly, I don't see any revolutionary idea that needs to be accepted in this situation. Scientists and the medical establishment aren't being asked to accept any new paradigm of disease. There's a disease; look for a ixchelkalinoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-86996543127369764512010-07-10T13:26:28.734-04:002010-07-10T13:26:28.734-04:00Thank you, I needed a bit of hope today. I talked ...Thank you, I needed a bit of hope today. I talked to one of our senators the other day and gave him the short version of the ME/CFIDS story and the recent FDA/NIH research paper hold. He did not seem to know anything about it. I am gathering information for him. Even if they publish the research we need the legislators to understand what has gone on with these government agencies.Celia Harrisonhttps://www.blogger.com/profile/15733639730157569439noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-16255396776534406652010-07-10T00:09:15.576-04:002010-07-10T00:09:15.576-04:00Brilliant. ThanksBrilliant. ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-74364208764761437032010-07-09T20:47:33.902-04:002010-07-09T20:47:33.902-04:00Mindy, by Hoffer's standards, we are right abo...Mindy, by Hoffer's standards, we are right about on time. It was in 1970 that ME was utterly rejected. Curiously it had been accepted as an illness which occurred in epidemic or sporadic outbreaks for a long while. But it didn't have one name; outbreaks were named by location. Shortly after the "Royal Free Disease" in 1955 struck a London hospital with a vengeance the jean Harrisonhttp://mame-net.orgnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-57011751142672381712010-07-09T20:07:15.233-04:002010-07-09T20:07:15.233-04:00Brilliant article, Mindy. Many thanks!Brilliant article, Mindy. Many thanks!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-40678409294479748792010-07-09T18:29:57.440-04:002010-07-09T18:29:57.440-04:00Great article. Thanks for the optimistic news. P...Great article. Thanks for the optimistic news. Please keep after Mr. Schekman after he returns from vacation and get a concrete date for publication.<br /><br />Dennis Hogan<br />Kent, WA<br /><br />CFS sufferer for 19+ yearsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-43341407189619648692010-07-09T18:08:37.931-04:002010-07-09T18:08:37.931-04:00Great essay, Mindy. It's what I've been wa...Great essay, Mindy. It's what I've been wanting to write for years but my brain has been too damn fogged up from this damn disease. Instead I wrote some rambling blog post about ME/CFS and paradigm changes that even I find rather long. ;-)<br /><br />It always amazes me that those in the "hard" sciences -- including (especially?) medicine have such hostility toward works like Michelle https://www.blogger.com/profile/05759387306193137795noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-25055156672790472382010-07-09T17:57:10.338-04:002010-07-09T17:57:10.338-04:00Thanks, Mindy. I will remain nervous until (a) the...Thanks, Mindy. I will remain nervous until (a) the study is published for real, and (b) we can see that it hasn't been watered down.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-42175294128187420062010-07-09T14:51:25.986-04:002010-07-09T14:51:25.986-04:00Great work, Mindy. I hope you are right about the ...Great work, Mindy. I hope you are right about the NIH/FDA study being published. Here is what the CFIDS Assn has on their website:<br /><br />"The researchers have conducted additional experiments as requested by the reviewers and their paper is expected to be published in the Proceedings of the National Academy of Sciences within weeks." (CAA website: http://www.cfids.org/xmrv/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-48801717228666053362010-07-09T14:48:25.759-04:002010-07-09T14:48:25.759-04:00Thx Mindy, made my day :)Thx Mindy, made my day :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-47891997335638548802010-07-09T13:28:39.954-04:002010-07-09T13:28:39.954-04:00Mindy, I hope your sources are correct. With all ...Mindy, I hope your sources are correct. With all of the rumors going back and forth, I feel like a puppet on a string. Thanks.Robinhttps://www.blogger.com/profile/03146259402428090072noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-9410891056760378132010-07-09T13:03:52.464-04:002010-07-09T13:03:52.464-04:00Great catch,Heidi. I meant 1706, not 1906.Great catch,Heidi. I meant 1706, not 1906.Mindy Kiteihttps://www.blogger.com/profile/12570126270241201680noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-52081757236230558692010-07-09T12:59:39.794-04:002010-07-09T12:59:39.794-04:00Great blog Mindy. Thanks.
Just a note though - i...Great blog Mindy. Thanks. <br /><br />Just a note though - is that date correct for the Jonathan Swift quote? Is this the same Swift who wrote Gulliver's Travels?Anonymousnoreply@blogger.com