tag:blogger.com,1999:blog-1078685116296921818.post8385930145139433152..comments2023-04-26T09:15:19.142-04:00Comments on CFS Central: Dr. Michael Snyderman's MD Anderson PosterMindy Kiteihttp://www.blogger.com/profile/12570126270241201680noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1078685116296921818.post-23809201323763046332010-10-26T20:23:56.117-04:002010-10-26T20:23:56.117-04:00This study is particularly interesting to me, beca...This study is particularly interesting to me, because one member of our Michigan support group was recently diagnosed with CLL as well as the ME/CFS that she had been diagnosed with more than 20 years ago. She has since moved to Oregon, and I pray that she will find effective treatments soon.Elsie Owingshttp://www.petitiononline.com/CFS2004/petition.htmlnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-78494459630839013002010-10-15T17:20:33.593-04:002010-10-15T17:20:33.593-04:00My great and hopefully unfounded fear for Dr. Snyd...My great and hopefully unfounded fear for Dr. Snyderman is that of the Flowers for Algernon effect -- great improvement followed by a total relapse. Were I in his place, having both leukemia and CFS, I would give retrovirals a whirl, too. I thank him for his courage and sincerely hope the improvement he's witnessed both increases and persists.Joe Landsonhttp://www.facebook.com/joe.landsonnoreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-9854425156744094102010-10-14T17:18:47.311-04:002010-10-14T17:18:47.311-04:00Does anyone know what reaction, if any, from the m...Does anyone know what reaction, if any, from the medical community on this? I don't much care - most doctors have been content to make fun of us while getting at least 1 visit a month for non-treatment of their pwc's. I'm just wondering if many others have been receptive. The doctors I see don't care and can't be bothered to check on the findings. Good to see a difference Shelley Carlsonhttp://www.facebook.com/shelleysf8noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-62688050435837838822010-10-14T05:15:51.813-04:002010-10-14T05:15:51.813-04:00After Wildaisy, all I can say is 'ditto'!
...After Wildaisy, all I can say is 'ditto'!<br /><br />Dr. Snyderman, a brave advocate! Thank you for standing up to them all with facts from your own experience.<br /><br />www/causes.com/511536kathrynhttps://www.blogger.com/profile/16819415896159458802noreply@blogger.comtag:blogger.com,1999:blog-1078685116296921818.post-52470875202460255302010-10-13T22:35:09.769-04:002010-10-13T22:35:09.769-04:00Thank you, Dr. Michael Snyderman: "These fin...Thank you, Dr. Michael Snyderman: "These findings suggest that XMRV is etiological for both the CLL and CFS and that virus-direct treatment was beneficial in this patient."<br /><br />As far as I can recall, you are the first person who has stated this publicly. I applaud your courage and I wish you the best with your health.<br /><br />Thank you, Mindy Kitei. Once again, you have Wildaisyhttps://www.blogger.com/profile/06367939092107380380noreply@blogger.com