tag:blogger.com,1999:blog-1078685116296921818Mon, 21 May 2012 11:55:47 +0000hereBeyond-the-headlines reporting on <br>Myalgic Encephalomyelitis/Chronic Fatigue Syndromehttp://www.cfscentral.com/noreply@blogger.com (Mindy Kitei)Blogger102125tag:blogger.com,1999:blog-1078685116296921818.post-8338818072315461987Thu, 17 May 2012 22:02:00 +00002012-05-19T13:29:38.640-04:00   A New ME Outbreak? A group of mostly female students aged 12 to 19 in San Antonio, Texas, have come down with a constellation of symptoms physicians are terming unusual. Those symptoms include chronic fatigue, headaches, nausea, vertigo, stomach problems and seizure-like activity. In a recent news segment by San Antonio reporter Sarah Lucero, a mother of one of the girls said that one http://www.cfscentral.com/2012/05/play-it-again-and-again-and-again.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-8180928398997244980Wed, 01 Feb 2012 18:02:00 +00002012-02-01T17:08:28.376-05:00Twelve teenage girls attending the same school in LeRoy, New York, suddenly developed tics and vocalizations—in other words, Tourette’s Syndrome.  Neurologists at the nearby Dent Neurologic Institute who've “treated” several of the girls are writing them off as suffering from hysteria (couched in the sanitized “conversion disorder” to make the diagnosis palatable) and insisting that the http://www.cfscentral.com/2012/02/leroy-and-lyndonville.htmlnoreply@blogger.com (Mindy Kitei)10tag:blogger.com,1999:blog-1078685116296921818.post-958758346906899339Wed, 30 Nov 2011 19:50:00 +00002011-12-01T09:37:08.686-05:00 Have You Been Served? Two years ago, when Science published the first study linking the retrovirus XMRV to ME, how many of us yearned to fast forward a few years to see if Dr. Judy Mikovits’s findings would be validated and the cause of ME finally nailed, as we hankered to do 20 years earlier when Dr. Elaine DeFreitas published her landmark study linking ME to another retrovirus? This heady http://www.cfscentral.com/2011/11/specificity-of-crazy-and-cattle-prod-to.htmlnoreply@blogger.com (Mindy Kitei)61tag:blogger.com,1999:blog-1078685116296921818.post-2946282821030501788Tue, 29 Nov 2011 22:10:00 +00002011-11-29T17:10:57.074-05:00 http://www.cfscentral.com/2011/11/judy-mikovits-turns-herself-in.htmlnoreply@blogger.com (Mindy Kitei)7tag:blogger.com,1999:blog-1078685116296921818.post-8986576248804397493Thu, 10 Nov 2011 18:21:00 +00002011-11-10T13:21:15.917-05:00In an interview on the Cure Talk website,  Chronic Fatigue Initiative and Columbia University researchers Dr. Ian Lipkin, who's a neurologist, and Dr. Mady Hornig, a  psychiatrist, stated that ME is a "neuropsychiatric" disorder because it affects concentration, memory and the autonomic nervous system.  However, Lipkin and Horig don't consider the disease psychosomatic. Labeling ME a http://www.cfscentral.com/2011/11/neuropsychiatric-versus-multisystem.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-5905051580636459365Fri, 28 Oct 2011 19:35:00 +00002011-10-29T20:05:06.558-04:00 <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt; http://www.cfscentral.com/2011/10/rituximab-genentech-tony-fauci-and.htmlnoreply@blogger.com (Mindy Kitei)30tag:blogger.com,1999:blog-1078685116296921818.post-3618028353270252490Sun, 02 Oct 2011 18:38:00 +00002011-10-02T14:38:22.587-04:00  <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-alt:ËÎÌå; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} @font-face {font-family:Calibri; panose-1:0 2 15 5 2 2 2 4 3 2; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; http://www.cfscentral.com/2011/10/q-with-scott-carlson-of-chronic-fatigue.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-5076398478565390896Fri, 30 Sep 2011 02:50:00 +00002011-10-01T00:25:08.393-04:00  <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt;http://www.cfscentral.com/2011/09/echolalia.htmlnoreply@blogger.com (Mindy Kitei)18tag:blogger.com,1999:blog-1078685116296921818.post-6510082412484971075Thu, 22 Sep 2011 18:33:00 +00002011-09-22T14:33:53.044-04:00 Anyone at the Ottawa ME/CFS conference who wants to share any news, please send it to: mindykitei.cfscentral@comcast.net or just post a comment the usual way in this post on Blogger. As short as a Tweet, as long as a page.  Thanks.  http://www.cfscentral.com/2011/09/ottawa-conference.htmlnoreply@blogger.com (Mindy Kitei)1tag:blogger.com,1999:blog-1078685116296921818.post-8340545408077043216Thu, 22 Sep 2011 01:12:00 +00002011-09-21T22:15:44.047-04:00Tomorrow Science will publish the Phase III study by the Blood Working Group, which includes scientists at the Whittemore Peterson Institute, the Food and Drug Administration, the National Cancer Institute, the Centers for Disease Control, and the commercial labs Abbott and Gen-Probe.   Tomorrow at 3 p.m. EST, ScienceLive, a weekly live chat hosted by Science's Martin Enserink, will delve intohttp://www.cfscentral.com/2011/09/to-be-or-not-to-be.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-6793123254231200518Sun, 11 Sep 2011 16:47:00 +00002011-09-12T17:51:10.800-04:00  <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt;http://www.cfscentral.com/2011/09/going-viral.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-5544868236252976589Tue, 16 Aug 2011 02:52:00 +00002011-08-16T13:43:18.602-04:00 The International ME Association (IMEA) and patient advocate and IMEA member Keith Baker have nominated Dr. Joan Grobstein, a neonatologist with ME, to sit on the Chronic Fatigue Syndrome Advisory Committee (CFSAC).  A graduate of Harvard College and University of California at Davis Medical School, Grobstein was serving as a neonatologist at Children’s Hospital of Philadelphia and the http://www.cfscentral.com/2011/08/doctor-doctor-give-me-news.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-7578053357246587255Thu, 04 Aug 2011 20:56:00 +00002011-08-04T17:00:44.106-04:00 @font-face { font-family: "Times New Roman"; }p.MsoNormal, li.MsoNormal, div.MsoNormal { margin: 0in 0in 0.0001pt; font-size: 12pt; font-family: "Times New Roman"; }table.MsoNormalTable { font-size: 10pt; font-family: "Times New Roman"; }div.Section1 { page: Section1;   Blood Working Group Results Expected in a Month Dr. Michael P. Busch, director of the Blood Systems Research Institute,http://www.cfscentral.com/2011/08/breaking-codes.htmlnoreply@blogger.com (Mindy Kitei)33tag:blogger.com,1999:blog-1078685116296921818.post-2460884603818152738Tue, 28 Jun 2011 23:25:00 +00002011-06-29T03:13:22.513-04:00  <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt;http://www.cfscentral.com/2011/06/you-dont-deserve-break-today.htmlnoreply@blogger.com (Mindy Kitei)15tag:blogger.com,1999:blog-1078685116296921818.post-5899668194345843053Mon, 27 Jun 2011 16:36:00 +00002011-06-28T10:16:01.460-04:00Last week, freelance writer Nigel Hawkes penned a piece for the British Medical Journal called "Dangers of research into chronic fatigue syndrome." In the article, Hawkes argues that "threats to researchers" from the ME/CFS community are "stifling" the science.  In particular, he mocks patients who've accused British psychiatrist Simon Wessely of throwing a young boy into a swimming pool to http://www.cfscentral.com/2011/06/jaccuse.htmlnoreply@blogger.com (Mindy Kitei)14tag:blogger.com,1999:blog-1078685116296921818.post-3876999296696774664Fri, 17 Jun 2011 01:52:00 +00002011-06-16T21:52:39.892-04:00Second Email Exchange Between Dusty Miller and CFS Central CFS Central:  You wrote: "Regarding the data in Lombardi et al., I was initially convinced by their extensive analysis, in particular, their ability to grow virus from patient materials. Indeed, we entered the CFS/XMRV field largely on the basis of these data. However, published and unpublished data now indicate that all of these methods http://www.cfscentral.com/2011/06/dusty-miller-redux.htmlnoreply@blogger.com (Mindy Kitei)19tag:blogger.com,1999:blog-1078685116296921818.post-265796517450628342Tue, 14 Jun 2011 16:45:00 +00002011-06-14T13:05:38.233-04:00Dr. Dusty Miller gave this statement to CFS Central about his XMRV study: "Our paper is in press in the Journal of Virology, and should be available online through the Journal website on Wednesday this week.  We performed our study independently of the Paprotka et al. (including Coffin) study recently published in Science, but the results do overlap.  Essentially, we found an endogenous http://www.cfscentral.com/2011/06/dusty-millers-xmrv-study.htmlnoreply@blogger.com (Mindy Kitei)69tag:blogger.com,1999:blog-1078685116296921818.post-2108358720098654222Tue, 14 Jun 2011 01:08:00 +00002011-06-13T21:41:17.840-04:00 <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt;http://www.cfscentral.com/2011/06/extraordinary-documentary-on-dr.htmlnoreply@blogger.com (Mindy Kitei)13tag:blogger.com,1999:blog-1078685116296921818.post-8431850569677699878Mon, 13 Jun 2011 04:28:00 +00002011-06-13T02:31:00.643-04:00here  <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt;http://www.cfscentral.com/2011/06/animal-farm.htmlnoreply@blogger.com (Mindy Kitei)3tag:blogger.com,1999:blog-1078685116296921818.post-4032182143519367492Sun, 05 Jun 2011 15:37:00 +00002011-06-05T11:37:47.508-04:00I sent this email to Dr. Jay Levy, co-author of the recent XMRV-negative paper published in Science last week: I’m a science reporter and blogger on CFS Central.  I read this quote by you on Bloomberg today [Tuesday, May 31], and have a few questions about it: “When that paper came out I was totally surprised and suspicious,” Levy said today in a telephone interview.  “Who knew there would be http://www.cfscentral.com/2011/06/jay-levy-got-some-splainin-to-do.htmlnoreply@blogger.com (Mindy Kitei)17tag:blogger.com,1999:blog-1078685116296921818.post-1652235592049607652Sat, 04 Jun 2011 00:23:00 +00002011-06-04T15:51:11.490-04:00It's not going to stop 'Til you wise up  Yesterday, I responded to Dr. Steven Salzberg's diatribe in Forbes against XMRV and Dr. Judy Mikovits.  Today Salzberg responded to me, and then I to him. Salzberg:"Ah, the Galileo gambit! Thanks Mindy, for illustrating a classic logical fallacy. You compare Mikovits to Galileo – the implication being that if the “establishment” disagrees with a http://www.cfscentral.com/2011/06/save-me-from-steven-salzberg-part-2.htmlnoreply@blogger.com (Mindy Kitei)24tag:blogger.com,1999:blog-1078685116296921818.post-4186032191223581107Fri, 03 Jun 2011 00:46:00 +00002011-06-03T00:25:15.059-04:00You look like a perfect fit For a girl in need of a tourniquetToday Forbes' Dr. Steven Salzberg joined the XMRV naysayers, penning the piece "Chronic fatigue syndrome: virus hypothesis collapses further."  Salzberg took a step further, labeling Dr. Judy Mikovits a "pseudoscientist." He's the same Steven Salzberg who doesn't believe there's an autism epidemic but does believe that acupuncture is http://www.cfscentral.com/2011/06/steven-salzbergs-pseudoscience.htmlnoreply@blogger.com (Mindy Kitei)28tag:blogger.com,1999:blog-1078685116296921818.post-5811175051192529836Tue, 31 May 2011 17:26:00 +00002011-05-31T13:26:11.093-04:00 Last night the Wall Street Journal published Amy Marcus's article "Chronic-Fatigue Paper Called Into Question."  Here is my response: As a science reporter and blogger, what I find most perplexing about the Science editors asking Dr. Mikovits to withdraw her study is that the jury is clearly still out. While some laboratories haven’t found XMRV in CFS patients, others have. The ones that http://www.cfscentral.com/2011/05/letter-in-response-to-wsj-article.htmlnoreply@blogger.com (Mindy Kitei)4tag:blogger.com,1999:blog-1078685116296921818.post-3424203615988076971Mon, 30 May 2011 16:22:00 +00002011-05-30T12:22:28.975-04:00 From ME/CFS patient Justin Reilly: There is a silver lining in winning less than $100K in that we are eligible for the $200K discretionary spending prize. (There is also an additional $300K in discretionary spending for which I believe all the charities in round 2 are eligible). I sent the following letter in case anyone wants any ideas. Thanks to Ann from whom I borrowed some wonderful http://www.cfscentral.com/2011/05/wpi-and-chase-healkick.htmlnoreply@blogger.com (Mindy Kitei)4tag:blogger.com,1999:blog-1078685116296921818.post-8773914532850744704Wed, 25 May 2011 22:43:00 +00002011-05-25T18:43:30.705-04:00  <!-- /* Font Definitions */ @font-face {font-family:"Times New Roman"; panose-1:0 2 2 6 3 5 4 5 2 3; mso-font-charset:0; mso-generic-font-family:auto; mso-font-pitch:variable; mso-font-signature:50331648 0 0 0 1 0;} /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt;http://www.cfscentral.com/2011/05/facebook-and-government.htmlnoreply@blogger.com (Mindy Kitei)11