The problem is that studies show that defects in ME patients' exercise capacity aren't evident until the second day of testing. With one-day testing, ME patients resemble deconditioned controls, a fancy phrase for couch potatoes.
In citing other reasons for her decision to go ahead with one-day testing, Unger said more patients could be tested in a one-day study. To which I say: Quality, Dr. Unger. Not quantity.
Exercise Not Negotiable
When asked to comment on Unger's proposed study, Snell wrote in an email to CFS Central: "Unfortunately I do not feel able to comment on the proposed CDC study at this point. I am not involved in the study and do not know much about the design, measures, or any hypotheses they intend to test. My views on exercise testing for ME/CFS are well-documented, including a number of presentations available on the WWW. The most recent is the FDA ME/CFS drug development workshop earlier this year. Please feel free to cite any of our work or public comments."
Patients can't let Beth Unger and CDC screw things up yet again with this shortsighted exercise study. If Unger remains resistant to a two-day test, she needs to be put where she belongs: on the unemployment line.
Email subject: two-day exercise test (feel free to change subject name; it helps avoid screening of your email)