Kitei: Which is in stool?
Kitei: But there are many people who do have intestinal complaints.
"Vulnerable people who do not have others looking out for them are most at risk for not getting the science that’s needed to address their problem."
The second one, which concerns cytokine measurements in chronic fatigue syndrome in peripheral blood will follow that probably by about a month. We’ve presented that data in public forums, because we felt it was important to get out.... But the actual publications in print will take a few more months.
"I have been in competition now twice to get funded, and the people there who reviewed me gave me abysmal scores. And the critiques of my work were unfair, and one of the people who critiqued my work said, in fact, that this is a psychosomatic illness. I was floored."
Kitei: She's [Hillary Johnson] a good reporter. Have you talk to Dr. Fauci about your theories [of ME]?
Lipkin: In fact I have spoken to him about it. That's why I can't understand why people think this is the case.
[In the first set of critiques I was also told] that everybody knows that this is a herpes virus infection of peripheral blood mononuclear cells so there’s no reason to look at the gut. This is the nature of study sections. You can’t control what people are going to do when they get on…. They do the best that they can, but that doesn’t mean they’re up to the task and it doesn’t mean that they’re appropriate.
But the solution for that is for the healthy ones, the people who have recovered, or relatives and friends of those who have these disorders need to push. I talk to everybody. I do everything I can to promote this. When people who are scientists tell me they don’t believe this is a real disease, I refute it, I refute it with facts, I talk to the media, but I don’t have any traction with Congress because I live in a blue state. And New York is in favor of scientific research and increasing the NIH budget. And the problem is, when you go into the South and the Midwest, you don’t have that support. The budget for the NIH has been cut dramatically.
I’m on the advisory committee for Francis Collins, and I can tell you that Francis Collins, the director of the NIH, believes that chronic fatigue syndrome is a problem. He would love to have the resources to allocate. The resources are going to have to come because people push their representatives to provide that kind of support. That's the only way it's going to happen. I’m sorry about that, because believe me, the last thing I want to do is begging for dimes and quarters for my work....
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